CONFERENCE COVERAGE SERIES
Leonard Berg Symposium: Presymptomatic Detection of Dominantly Inherited Alzheimer's Disease, 2009
Eric P. Newman Education Center, Washington University, St. Louis, Missouri, U.S.A.
01 – 02 October 2009
In October 2009, Alzheimer's researchers from around the world spent a day with caregivers and patients of families with dominantly inherited Alzheimer disease. They exchanged not only scientific news about the latest in preclinical detection of AD, but also harrowing perspectives about what it's like to live with a form of AD that strikes in generation after generation with a cruel 50 percent chance. These families are excluded from drug trials, even though they arguably hold the key to test prevention of AD. That exclusionary stance is now changing as the science and the families themselves are coming together. Read Gabrielle Strobel's seven-part update of the DIAN registry and related talks at the 7th Leonard Berg Symposium held at Washington University, St. Louis, Missouri.
St. Louis: Scientists, Families Target Preclinical Detection, Trials
Earlier this month, researchers met to devote two intense days of talks and discussion to their goal of presymptomatic detection of Alzheimer disease...
St. Louis: The Family View—What Do Study Volunteers Want From DIAN?
When do researchers get to hear from study participants how deeply their families have struggled for decades and what kinds of services would make studies worth their while?...
St. Louis: Cognition Pre-dementia—Like eFAD, Like LOAD?
At the 7th Leonard Berg Symposium scientists and patient advocates came together to exchange the latest news on detecting disease presymptomatically...
St. Louis: Biomarkers Pre-dementia—Like eFAD, Like LOAD?
As throughout this conference, talks toggled between what’s known in LOAD and eFAD, comparing all the while how well knowledge on these forms of AD matches up...
St. Louis: Is Rare Familial Alzheimer’s a Model for the Millions?
One question that pervaded the 7th Leonard Berg Symposium is whether dominantly inherited Alzheimer disease really is the same disease as the common late-onset forms...
St. Louis: Imaging Preclinical AD—Can You See it Coming in the Brain?
At the 7th Leonard Berg Symposium, brain imaging researchers of various stripes took stock of what brain imaging tells the field about the preclinical period of Alzheimer disease...
St. Louis: An eFAD Prevention Trial—One Man’s View
DIAN was founded with the hope that its participating families could be offered a prevention trial and/or treatment trial before too long...